Jen was able to knock out both an MRI and CT scan today, leaving only ‘full body’ and ‘bone scans’ late next week, but they want to push those up as well. But, we will have results for today’s scans and blood tests tomorrow, and maybe some answers. She also got another two pints of fluids, and her BP was perfect and her pulse just a little high. The nurse today was encouraging and optimistic and thought a lot of what’s happening is severe dehydration related.
She seems to be getting stiffer and stiffer, though, and I just noticed tonight her legs seem swollen and tight, so I messaged her doctor. She fell getting into the car today but, my back be damned, I got her in on my own this time. She spent the day in a wheelchair and the friendly nurse recommended one for us from Amazon.
What I realized today is it’s not balance, but kind of her muscles flipping off and on randomly, like the spasms she gets in her sleep. So she’s standing but then everything goes slack for a second and that’s enough. It was only when I watched her try to use her phone that I realized that was more what was happening, because she couldn’t hold it steady for more than a few seconds. And, of course, that sounds more neurological. The MRI is to look more closely at her head, one of the two ‘hotspots’ she has (the other being her liver).
What’s most concerning remains her cognitive abilities. On one hand she remembers every nurse’s name and they make small talk. On the other she forgets what’s happening sometimes or where she is (she thought we were driving in California today!). Oh and she said she still worked at HIS and that they gave her plenty of time off. Mixes up words, enters halfway through conversations in her head. Now she’s self conscious too and saying she’s losing her mind or getting dementia. She’s definitely in there but the view gets pretty cloudy. I’m trying to write down as much as I can, just in case.
She wanted a Whopper for dinner, which was nice, even though she ate about a quarter of it. Asleep already, but it was as long a day as there could be for her, lately. Tomorrow should be spent resting, and catching up with the doc on his findings, unless they find space in Diagnostic Imaging again.